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Thread: epi pen advice

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  1. #1
    Join Date
    Jan 2005
    Location
    Dedham, Maine
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    351

    Question epi pen advice

    Jonah has been diagnosed with a nut allergy and so now we are traveling with an epi pen. Question for anyone who is already traveling with an epi pen is how do you keep it safe on the trail? I see the case doesn't keep the epi pen from breaking and since it needs to stay between 64 - 78 degrees how do you keep it cool (but not on ice since you aren't supposed to refridgerate it).
    I know that it is probably overboard to take on trail, but we find food in caches every once in awhile and you never know if he'll react to some other unknown thing (someone's peanut butter soaked hands playing with trinkits in a cache and then J-dude pawing through trinkets).
    Your thoughts????
    They say I have A.D.D. but they just don't understand. Oh Look! A chicken!

  2. #2
    Join Date
    Jan 2008
    Location
    Canaan , Maine
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    498

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    So Sorry to hear about the lil' guy. The worst is he's too young to understand why.
    I carried an epi pen when I got out of the hospitol from an allergy attack. They really are pretty sturdy , but I would just carry it seperatly from your normal Bag. Basically to be able to get at it fast. Maybe a hip bag or even a drink bottle that can hung over the shoulder. Keep it out of the sun and put it in a cooler while traveling and you should be OK.
    Be Brave little Mamma, it's gonna be a long journey, but you will get there in the end!!!!
    Keeping you in my thoughts and prayers.
    Opalsns

  3. #3
    Join Date
    Apr 2008
    Location
    Albion, Maine
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    324

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    A child size epi-pen should fit into one of those plastic cigar tubes. Also a pencil along the epi-pen, wrapped with some bubble wrap and clothe medical tape. It will protect it as well as insulate it from the extremes of cold and heat. Epi can also be given nasally, I think their is a nasal misting despensor available now. Ask your pediatrician.
    There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.~~Albert Einstein
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Many wise words are spoken in jest, but they don't compare with the number of stupid words spoken in earnest. - Sam Levenson (1911 - 1980)

  4. #4
    Join Date
    Apr 2008
    Location
    Calais, Maine
    Posts
    12

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    I carry mine on my belt in a Minimag light case.

  5. #5
    Join Date
    Jun 2004
    Location
    Auburn, Maine
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    621

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    Back pack here. We figure a warm epi pen is better than no epi pen.
    If you want to try cross country skiing, start with a small country

  6. #6
    Join Date
    Jan 2005
    Location
    Dedham, Maine
    Posts
    351

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    thanks great ideas! I didn't realize they come in a plastic case (we finally got them yesterday) so i'm not as worried about breaking them now. I just have visions of needing them and they don't work because at some point they got too hot and the medicine degraded. I know I'm a worry wart, but it specifically said NOT to refridgerate so I can't figure out if it is 90 degrees what the %&%^*% do they expect us to do? I'll just go with the flow and protect from sunlight and if we'll be out for more than 30 min to 1 hour I'll plan to bring cold pack. deep breathing!
    Thanks again.
    They say I have A.D.D. but they just don't understand. Oh Look! A chicken!

  7. #7
    Join Date
    Dec 2005
    Location
    ME
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    3,517

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    Wooh - the room were we stored our Epi supplies at Public Health was not air conditioned. It was often over 80 degrees in those rooms on a hot day. Despite many complaints to the supervisors and the pharmacist - everyone assured us everything would be fine. Maybe some of the paramedics amongst us could comment on Epi-pens and the heat........or a google search would help.

    Mini-man, had a great team in his great family and the rest of GCM wish him the best - he will be hiking around us before we know it!

  8. #8
    Join Date
    Jan 2005
    Location
    Dedham, Maine
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    the google searches and the manufacturers recommendations that i have seen so far say 55-86 degrees. what keywords are you using? As I said, for a short time I'm not esp concerned, but if we are going to be out for an hour or 2 (granted we rarely go out when it gets that hot, but you never know)....i don't want to be replacing these all the time.

    I did see many folks are using 'frio' bags which do keep them at a cooler temperature. btw, anyone who does have an epi and you like the frio bags, if you are crafty you can make one yourself, the gel crystals are available at most craft stores.
    They say I have A.D.D. but they just don't understand. Oh Look! A chicken!

  9. #9
    Join Date
    Oct 2008
    Location
    Auburn, Ma
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    17

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    Sorry to hear of your lil ones misfortune. Cloud herself was diagnosed (the hard way) with NUT allergies at 7 months old. Scary being on the road so far from home when it hit. We carry a special fanny pack, "the pink Pouch" we call it. We keep a couple of epi pens in it some Tylenol and liquid benadryl and a few other misc first aid supplies. At this point one shot will only hold her till the ambulance arrives. Sadly she's been to the ER way too many times but Praise God, never needed to be intubated.

    Protect the pens from extremes: Direct sunlight, hot cars, frozen glove boxes etc. and watch the expiration dates. Practice (on an orange or apple) with out dated pens or practice pens. The time you neeed it is not the time to try to figure it out. You can't be afraid to use it when needed. Better to use it then doubt and not... The MOST Important thing you need to learn is to be NUT FREE. No I'm not talking about the friends you keep, but what is in your house, at the parties you attend, school, church every where. There are nuts in just about everything. Read all labels, all the time. Food mfgs can and will change ingredients and processing methods. And sadly I must also say, trust no one.. You need to protect your child at all costs. Teach everyone in your family on the seriousness of this diagnosis, it is a matter of life and death. And yes, it does qualify as a disability under the Americans with Disabilities Act.

    Overboard on the trail? I think not Have you never seen a nut tree in the wild?

  10. #10
    Join Date
    Jun 2004
    Location
    Solon, Maine
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    Quote Originally Posted by Ripton View Post
    Overboard on the trail? I think not Have you never seen a nut tree in the wild?
    Actually... Yes! LOL!

    I don't now anything about nut allergies, and don't know what nuts might bring on an allergic reaction, but here in Maine I often see Butternut trees - especially near old farmsteads. And the ditches along Maine's logging roads are a great place to find Hazelnuts. We also have Beech Nuts, and I note that this seems to be a very good year from them. I don't recall seeing Hickory nuts here in Maine, but I know you have them down there in Mass, so they might be in southern Maine.

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